Guest Book

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comment by Jordanne Menzies

I am glad you went and i hope the treatment works well for you.

comment by Preston Walker

I am soo glad you are feeling well!!  

comment by Daniel Faiella

I love your web site! You look great and I am so happy you are feeling so good!!!

comment by Deb Johnston

You have given me valuable knowledge about this new procedure-been fighting this damn disease for nearly 25 years and I think it is time to stop!Continued success with your treatment, Holly!  I am pullking for ya'!D~

comment by Keri Chavez

Your words of wisdom will always stick with me, "Only you can be your own advocate, when you don't feel comfortable about something ask the doctor more questions or get a second opinion. You have that right. Don't just take things at face value." You are such an inspiration for all of us who loss hope at times. Love ya

comment by David K. Cates

Blogs and Articles on blog.advids.co are too great and easy to undersatnd. They have all subject related blogs. Just have a look.

comment by Cheryl Evans

Hello Holly, I just sent you an email; therefore thought it only prudent to sign your guestbook. I look forward to hearing from you. I agree with all that have said how courageous and informative you are. I'm here sitting by the phone, so call or reply as I am very serious about this. Best Regards, Cheryl

comment by Pam Woods

I am so happy Holly contacted me threw facebook. My son and grandson are going to Panama in Sept because my grandson is paralyzed due to an auto accident...I am very nervous about this trip but I believe everything will go great and we as a family will hope for a miracle....

comment by Astrid

Hi! I am a "girl" 46 years old, ms since 28, married, 2 children  and we live in Norway. Best regards Astrid

comment by Patsy Klassy Windsor

Hello Holly, Just returned from my 50th class reunion where I once again got to visit with your dad after -----let's just saw many years.  He told us all  your amazing story as well as his!  So wonderful to hear a success story!  I only wish this had been available when my father was ill.  Thirty five years ago he died from a dreadful disease called scleroderma.  Basically, his skin and internal organs hardened, he lost feeling in his hands, arms and legs and suffered from huge open sores.  After reading what you have to say about the treatment, I have no doubt but that it would have helped him.  They STILL have no treatment for his disease. Best wishes for your continued return to good health and I, as well as many others who heard from your dad this weekend, will pass your story on.

comment by Kit Minden

 Hi Holly!Learning a lot from you!Thanks!

comment by Nikki Waddle

Hey Holly--            I was on youtube and stumbled onto your video entries. Your experience with the use of stem cell therapy sounds so positive. My question is did you have to pay for it out of your own pocket or did you have health insurance? I have had MS since 2001 and I have been quite eager to hear from people who have done stem cell therapy.  I have been on an injectable therapy since about 2002 and I want to get off. I have health ins. but it's CRAP! I do hold duel citizenship in the United Kingdom so therefore I get FREE healthcare over there.  I was thinking about the trip but I really cannot afford it.  I was denied any sort of gov assistance so I generate NO income at all.  I have definately been one of the fortunate ones who have not been too badly effected by our disease. I too started a website of my own it is called www.askmeaboutms.com.  You should check it out and let me know what you think.  I also have a guestbook.  I do have more questions for you but I don't want to put so much on you at once. I appreciate your time. Have a good one.  Hope to here from you soon--Nikki Riverside, Ca. nikfam7@verizon.net

comment by Linda G.Cox

Holly, I saw your YouTube video and I am so excited for you!  I am www.fb.com/lindagracecox and @msrelief on twitter.  I\'d love to talk to you! 

comment by Linda Storey

Holly, I just watched your video.  I\'m glad to see you\'re being aggressive.  I was diagnosed in 1977 and flew to Germany in 1988.  The doctor there stopped my disease but I am still stuck in a wheelchair.  Since I\'ve have no progression of the disease I am considering going to X cell in Germany.  Are you familiar with them?  Also what is the name of the clinic you went to.  Please check out my nonprofit website, raising funds for MS.www.CASEFORMS.org also www.lindastorey.com 

comment by Ximena

Hi I'm a big fan of yours, your courage and how you inspire tons of people. :)

comment by gloria benanti

while this subject can be very touchy for most people. very informatics blog. i have also a offer of more information.  i do appreciate that you have added relevant and intelligent commentary here though. graduate school statement of purpose

comment by Paul Troche\

I am scheduled to have my stem cell treatment beginning on 12 May 2014. I was diagnosed with MS in July of 1994. My neuroligist  says that I still have relapsing remitting. I have not had an an exacerbation since 2006. I am hoping for the best results possible, however, only time will tell I suppose.

comment by Ruben S

Hello Holly, Thank you for sharing your story and being brave enough to test the waters elsewhere. I came upon your youtube video, and have been reading up on all the information. My younger brother is was diagnosed in 2002, but am looking for an alternative treatment. Thank you, Ruben S. -7-

comment by Virginia Glover-DAmico

Hi Holly, I guess you are home from Costa Rica by now. I would really love for you to drop me a line and let me know how you are doing. So far, there has been no change for Ron since we were with you in CR back in Sept. I don't think the cells helped him as much this time as they did last year.  Hope everything is well with you. Please let me hear from you. Virginia

comment by Linda Stewart/Canada

Hi, I have been following stem cell treatment as it moves forward.  I know it is the direction to move and appreciate your story. Thankyou, I too am not afraid to try new things and have been helped with Liberation Treatment and am soon ready for the next step.

comment by Michael Todd

You have done me a big wonderful service by organizing and presenting all of this information.  I will be sharing this with my daughter Dorita so that she can follow in your steps and hopefully get out of her wheel chair and go back to enjoying her life.  Thank you for all you are doing.  You are inspiring.

comment by Lisa LoCascio

Holly Thank You for this very imformative blog my sister in law has had MS for five years and her copaxine is not working anymore I would like her to go to CR for SCI but she wants to wait until it is made available in the USA-- considering the amount of money the drug companies are making her I doubt that will ever be-- how sad- Lisa from New York City

comment by Judy

Thank You for all you have done , my son has MS since 2002, and is planning a trip to CR because of your story, he has hope.  God Bless You.

comment by Shandon Fugate

Very informative site.  My son is 4.5 yrs old with Cerebral Palsy and wondered if many CP pts are being treated in Costa Rica?  Thank you so much for all the information and sharing your experience.

comment by Heather

Holly, what an incredible story of courage and hope you share. I want to thank you for your story! My dad has had MS now for 20 years, and I hope one day he is given the chance to go through a treatment that works, like yours. Take care, and God bless! Heather

comment by Fred

I am an 88 yr.old male living alone and am completely enthralled with the technology etc. of stem cells.  I don't personally have too many malades other than old age and hearing loss.  With computers and the access to so many places to explore re stem cells and what ongoing research taking place, to me it is a miracle. You are an inspiration.    Fred.      Lindsay, Ontario, Canada

comment by LaTish

Holly, Thank you for your courage in being a part of this clinical endeavor.  It is because of persons like yourself, that we can hope for a cure and help with M.S. disabilities. LaTish aka Fishead/FishOP from MSW

comment by darnell morris

Holly,I hav just learned of you. Will keep up with you as I am also going to Panama in Sept. for rheumatoid arthritis. I know we have different things going on , but I am thankful there is hope for me and others . Thanks Darnell (female)

comment by Sheila Cozad

 Thank you for sharing hope.  You have my deep respect and admiration.Best regards,Sheila, mother of a beautiful daughter who reminds me so very much of you and your stroy.

comment by Giselle Tomiselli

Thanks for your informative and wonderfully exciting website.  I am planning on going to Costa Rica to have my stem cell treatment on August 9th, 2009.  I have been diagnosed with MS since 2000 and have been on Betaseron, Novantrone, and Tysabri.  There was no other road to take and I am glad I have made the decision to take this road less traveled.  Congratulations on your success and hope to be able to share in it soon also.

comment by Tina H O\Neill (Curtiss)

Hi Holly, I really enjoy your adventure so far !! I\'ve had quite the trip myself !! After 20 yrs with MS and almost 4 stuck in a room I got my life back again with Tysabri !! It\'s my miracle drug for now !! Not sure how long it will continue to work, but will enjoy what I get for sure!! I can DANCE again !!!  Stem Cells  the HOPE FOR MANY !!! Is it my NEXT MIRACLE !!! Maybe ?!! I know something will be !! Never Give Up or Give In !! Good Luck !! You Go Girl !! Tina

comment by Carol

Hi, Holly,It was so good to meet you and have dinner in Panama. We are still here, being looked after by Javier.  Our friends arrived from Brandon on Sunday and we are showing them around.  Morris has 3 more infusions in the next 3 days. He feels good.Thanks so much for your info and encouragement.You go, girl!

comment by John Day

I really enjoyed meeting you at Warrens home and have enjoyed your website. I will be a frequent visitor.John Day

comment by Sarah Loveless

Hello, We have never met but I am one of your fellow San Diego Zeta sisters.  Thank you so much for creating this website.  I am looking forward to sharing it with family and friends.  I hope to meet you soon.  Best of luck and love on your treatments.  --Sarah Loveless

comment by Angie Mayhew-Groves

Hello Holly!I just wanted to stop by to say Hello! I haven\'t talked to you in a while. I hope all is well. I shared your website on my Inside My Head Facebook. Just in case others would like more information on stem cells treatments that are avaliable. Thanks again for sharing your knowledge and experience. This is very informative and helpful.Take Care!P.S. Could you please click "Like" on my Facebook page for Inside My Head? Thank you! I would greatly appreciate it! <3

comment by Vern Beachy

Hi Holly; Just a note to say Hi. Hope you are doing extremely well!

comment by Dan Cornia

Holly what a wonder site you have developed. The only thing I knew about MS before reading all of your imformation was it was a terrible disease that Annette Funichello had. I had no idea of just what MS was. I too have diabetes2, arthuritis in my shoulders, hands and knee. I have dizziness once in a while also. I don\'t know if stem cells would work for me but the next time I see my Dr I\'ll ask and see what she thinks. I\'m fortunate and do not have a crippling disease all of the time, only mild flair ups and inconviences. Thank you again for this wonderful and informative work you have done. Sincerly, Dan

comment by Arthur Collins

I guess I should sign your guest book as I been here so many time for your up-dates.  

comment by mike

Good day, My name is Mike Carpenter and a friend of mine sent your e-mail to me to check out, her name is Priscilla Wolf. I was diagnosed with MS in 2006 and have had some of the same issues as you. I have been blessed to be married to a lovely , intelligent woman who is also a RN. Margee has helped me a great deal in coping with this. I also have the (benifit  ?) of  being a 100% disabled Vet so I receivew my treatment and meds from the VA. I am currently on Rebif 3 times a week. I have not had any major relapses, just a steady decline. In the cooler weather I like to drive my motorcycle ( a HARLEY) Thanks for putting up this website, I am  always looking for more information on MS.  Time to go and get more done this AM.

comment by Lisa Klopschinski

On September 16th 2005. I was eating lunch with my then 2 year old daughter. While we were eating lunch my food feel out of my mouth. I looked in the mirror and the left side of my face was droopy. I couldn't figure it out. I called my husband in which was working in town for Verizon. He came home to take me to the ER at East Pasco. At East Pasco the Emergency room Dr. said it looked like I had Bell's Palsy. He said he was going to order at CT scan b/c the Dr. on Monday would order one and since I was there might as well go ahead and have it done. I had the Ct scan done, the result were that there was a growth on my brain. He told me I wasn't going anywhere. The Dr. then ordered a MRI the MRI showed more growths. There at East Pasco I had lots of test's which included blood, Tee, MRI's, & CT's scans. This all happened on Friday. By Wednesday the following week I had lost feeling in my left thumb. At this time my Dr's all agreed I needed to be transferred to Tampa General. At Tampa General I had Spinal Tap which in it's self was awful. The Dr. who did the Tap didn't numb me correctly, so he was kinda enough to say I can continue, with out numbing you or pull out and start all over. That was the most painfullest procedure I have endured awake! I believe for 2 day's after I was on Morphine for a migraine! After the spinal tap came back clean. I had a Angio Gram, countless MRI's & CT scans. My Dr's kept telling me I had disease such as " cat scratch fever, Lupus, viral encephalitis, lot's more! The final call for me was to have a brain biopsy. On September 30th of 2005. I had a brain biopsy. After the biopsy I stayed in the hospital 3 more days. When I came home I had 12 staples on the right side of my head. I was home for less than 48 hours and I started having seizures when I was getting Nicholas ready for school. Not wanting Nicholas to be worried, I had them timed. When I knew they were coming on, I would hide in my bedroom. My sister came over and finished getting Nicholas ready for school. Later that day I started seizure medication. A week later I was able to get my staples out, and learn that the biopsy came back as possible Viral encephalitis. Now it's November 11th 2005. My husband was off that day as being veteran's day. That day I lost all speech control. I couldn't talk. It was such a struggle to get anything out. We called Nero Dr. he said not to worry about it, I could wait until next week to have an MRI. I along with my family new I needed to get to Tampa general asap. The ER Dr. there told me I was having a stroke. I was only 31 and having a stroke. At this time I lost all facial feeling on the left side of my face, my left I is droopy, and the feeling in my left thumb, and index finger (all of which I still don't have feeling and never will). At this point I switched Nero Dr's three times until I found Dr. Edmund Grant. He was my Savior Dr! He diagnosed me with Multiple Sclerosis. I was happy to finally know what I had. I was bound and determined not to let this disease over take my life. It is a struggle to live with. You have to learn to have a good attitude, and not let every little hurdle get you down. I am now taking an injection every other day to slow the progress. I am now seeing a wonderful Dr. at the Shepards Center in Atlanta Ga. This is an amazing treatment center for patients with M.S. I am very thankful for my husband, kids, parent's, sister & friends. Without them I couldn't have gotten through this nightmare! To everyone live everyday like it's your last b/c you never know what tomorrow will bring!  

comment by Russell Miller

Congratulations on keeping such a informative web site.  I hope your improvements in health keep on keeping on.

comment by Tom

Hello i just wanted to check in and see how you are doing ?

comment by shaik faiz

Hii,       How long do we stay in remission after the treatment.Me personally not worried about reversing the damage.

comment by Rebecca Tolin

I\'ve had the opportunity to meet and interview Holly for a series I\'m writing about Cell Medicine & Medistem. I\'m a freelance journalist for the non-profit website voiceofsandiego.org. I\'m looking to interview someone else by  phone who is planning to go to Cell Medicine in the near future. If this is you and you\'re willing to talk with me, please email rebeccatolin@yahoo.com. (I\'m on deadline to speak with someone this week, June 8 - 11) Many thanks!

comment by Jan Welden

Holly - you are very brave-I am in awe - you really make sh@@ happen.  I have had MS since 1990 - last 4 years have really kicked my butt.  I take no medication - not really sure about the choices - so many mixed reviews.  I definitely will follow your progress.  I wish you the very best. Jan

comment by Jeff Koblitz

Thank you for the courage to share your story and help so many people.  Your story and website will touch thousands of people like me that you will likely never meet.  Because of you and your story I'm heading to CR to reverse this crappy disease and get my life back.   My family and I thank you in advance, the difference you have made and will make in people's lives from this will be ie97measurable.  God bless you!

comment by Tony

Hi Holly, I was wondering how you are progressing since the stem cell treatment. Has it steadily improved your symptons / condition. I am due to see a MS specialist here in the UK, but they will not carry out treatment here in the UK at present so the only way forward will be to follow your example and head abroad. Kind regards, Tony PS I am 50, male and PPMS

comment by Kris Moy

God, Holly - you are absolutely awesome.  You will be in my prayers.   You keep fighting and leading the way. Your courage inspires me.  Much love,   KrisPS  You look as stunning as ever... ;)

comment by Angela Groves

Hello Holly,I am a supporter of stem cells as well. And, as we both know we cannot get this therapy here in the United States. I am very much interested in this treatment. However, I didn\'t see anywhere how much this costed you. How many infusions did you have? How long did you have to stay in Costa Rica? I have R/R MS. I was diagnosed with it November 2000. I am 38, married and have two young children. I haven\'t been able to work since 8.2002. This fatigue is really getting to me. I can\'t clean like I use to. I get very tired very quickly. I hurt and have very sensitive skin to the touch. For instance, burn sensations when touched. My list could go on. If you could please email me the cost of this treatment, how many, and length of stay I would be forever grateful to you.Congratulations on all of your improvements! I think this is wonderful! USA needs to stop being so money hungry and bring in the stem cells.Take Care!Angie Groves

comment by Ozzy Tapanes

I am sooo happy to see that your quality of life has improved, I\'m currently looking into stem cells to aid in my recovery of a Traumatic Brain Injury that has left me with nerve damage affecting my keys & speech