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Thank you for visiting my website.
Let me know you stopped by.
Feel free to comment or just say "Hi!"


 
  Don
Monday, March 2, 2015
You have a remarkable website and a fascinating story! I hope I can soon follow in your footsteps… I'm getting my stem cell transplant in Panama in six weeks . :-) I am a quadriplegic from MS and I was diagnosed in 1996. Thank you for sharing your story and God bless!
 
 
  Cindy Taylor
Saturday, July 19, 2014
Thank you so much for sharing your inspiring journey.  I'm very interested in finding out all that I can and determine whether this is something I would be able to afford and also, if there are certain MS patients that do not qualify.  I have Primary Progressive MS and am desperately seeking some solutions to  keep myelf out of a nursing home.  I'm widowed and live alone, and am afraid that the day will come where I will no longer be able to do this.  I haven't been able to drive for nearly 2 years and NEED to find some way to keep my independence.  Does one have to be wealthy to be able to afford this? Thanking you sincerely, Cindy Taylor
 
 
  Elisa Wiebe
Saturday, July 5, 2014
Hi Holly, I was looking around on you tube treatment for MS and I came across your video, and I realy liked it, I'm so glad you found this treatment to help you, I know how difficult it is to live with MS, I found out that I had MS in January 2014, I have been looking for answers since 1998, here in Canada Dr's couldn't find what was wrong with me, just put me on a bunch of antidepressants,  last December we went to Mexico in the hopes the Dr's would be able to find what was going on with me, and sure enough he said I have MS and I had it for at least 15 years, finally an answer, but the Dr's here in Canada  can't treat it because I need to have more nerve damage before they are aloud to treat my MS, so we thought we had no choice but to buy it from Mexico, but the Medication is so expensive we can't afford to buy it, so I'm left without treatment. So this is my story. Good luck to you and thank you for sharing your story. Love Elisa
 
 
  Ruben S
Wednesday, May 28, 2014
Hello Holly,

Thank you for sharing your story and being brave enough to test the waters elsewhere. I came upon your youtube video, and have been reading up on all the information. My younger brother is was diagnosed in 2002, but am looking for an alternative treatment. Thank you,

Ruben S. -7-
 
 
  Paul Troche'
Saturday, March 8, 2014
I am scheduled to have my stem cell treatment beginning on 12 May 2014. I was diagnosed with MS in July of 1994. My neuroligist  says that I still have relapsing remitting. I have not had an an exacerbation since 2006. I am hoping for the best results possible, however, only time will tell I suppose.
 
 
  gloria benanti
Saturday, September 7, 2013
while this subject can be very touchy for most people. very informatics blog. i have also a offer of more information.
 i do appreciate that you have added relevant and intelligent commentary here though.
graduate school statement of purpose
 
 
  Ximena
Friday, September 6, 2013
Hi I'm a big fan of yours, your courage and how you inspire tons of people. :)
 
 
  Fred
Thursday, June 6, 2013
I am an 88 yr.old male living alone and am completely enthralled with the technology etc. of stem cells.  I don't personally have too many malades other than old age and hearing loss.  With computers and the access to so many places to explore re stem cells and what ongoing research taking place, to me it is a miracle. You are an inspiration.    Fred.      Lindsay, Ontario, Canada
 
 
  shaik faiz
Tuesday, May 7, 2013
Hii,       How long do we stay in remission after the treatment.Me personally not worried about reversing the damage.
 
 
  Arthur Collins
Saturday, March 9, 2013
I guess I should sign your guest book as I been here so many time for your up-dates.
 
 
 
  nicolena
Thursday, March 7, 2013
please check-out my adult stem cell jouney at www.nicolenaninaart.com we must all support stem cell therapies ,thank-you
 
 
  StrangersEyes
Friday, March 1, 2013
i  love everything about stemcell . i am a longterm stemcell investor who buy and hold stemcell company i love the lay out of your website 
 
 
  Linda Stewart/Canada
Saturday, January 26, 2013
Hi, I have been following stem cell treatment as it moves forward.  I know it is the direction to move and appreciate your story. Thankyou, I too am not afraid to try new things and have been helped with Liberation Treatment and am soon ready for the next step.
 
 
  Sheila Cozad
Sunday, January 20, 2013
 Thank you for sharing hope.  You have my deep respect and admiration.Best regards,Sheila, mother of a beautiful daughter who reminds me so very much of you and your stroy.
 
 
  Kit Minden
Tuesday, November 20, 2012
 Hi Holly!Learning a lot from you!Thanks!
 
 
  Tracy Cooke
Wednesday, March 28, 2012
Hello Holly I also have SPMS and want to try stem cell treatment as am also losing a lot
 
 
  John Day
Thursday, January 19, 2012
I really enjoyed meeting you at Warrens home and have enjoyed your website. I will be a frequent visitor.
John Day
 
 
  Carol
Tuesday, October 11, 2011
Hi, Holly,
It was so good to meet you and have dinner in Panama. We are still here, being looked after by Javier.  Our friends arrived from Brandon on Sunday and we are showing them around. 
Morris has 3 more infusions in the next 3 days. He feels good.
Thanks so much for your info and encouragement.
You go, girl!
 
 
  Angie Mayhew-Groves
Sunday, October 9, 2011
Hello Holly!

I just wanted to stop by to say Hello! I haven't talked to you in a while. I hope all is well. I shared your website on my Inside My Head Facebook. Just in case others would like more information on stem cells treatments that are avaliable. Thanks again for sharing your knowledge and experience. This is very informative and helpful.

Take Care!

P.S. Could you please click "Like" on my Facebook page for Inside My Head? Thank you! I would greatly appreciate it! <3

 
 
  Ozzy Tapanes
Wednesday, May 4, 2011
I am sooo happy to see that your quality of life has improved, I'm currently looking into stem cells to aid in my recovery of a Traumatic Brain Injury that has left me with nerve damage affecting my keys & speech
 
 
  Linda G.Cox
Monday, March 28, 2011
Holly,
I saw your YouTube video and I am so excited for you!  I am www.fb.com/lindagracecox and @msrelief on twitter.  I'd love to talk to you! 
 
 
  Dan Cornia
Sunday, March 13, 2011
Holly what a wonder site you have developed. The only thing I knew about MS before reading all of your imformation was it was a terrible disease that Annette Funichello had. I had no idea of just what MS was. I too have diabetes2, arthuritis in my shoulders, hands and knee. I have dizziness once in a while also. I don't know if stem cells would work for me but the next time I see my Dr I'll ask and see what she thinks. I'm fortunate and do not have a crippling disease all of the time, only mild flair ups and inconviences. Thank you again for this wonderful and informative work you have done. Sincerly, Dan
 
 
  Angela Groves
Saturday, October 2, 2010
Hello Holly,

I am a supporter of stem cells as well. And, as we both know we cannot get this therapy here in the United States. I am very much interested in this treatment. However, I didn't see anywhere how much this costed you. How many infusions did you have? How long did you have to stay in Costa Rica?

I have R/R MS. I was diagnosed with it November 2000. I am 38, married and have two young children. I haven't been able to work since 8.2002. This fatigue is really getting to me. I can't clean like I use to. I get very tired very quickly. I hurt and have very sensitive skin to the touch. For instance, burn sensations when touched. My list could go on.

If you could please email me the cost of this treatment, how many, and length of stay I would be forever grateful to you.

Congratulations on all of your improvements! I think this is wonderful!

USA needs to stop being so money hungry and bring in the stem cells.

Take Care!
Angie Groves
 
 
  Pam Woods
Friday, August 27, 2010
I am so happy Holly contacted me threw facebook. My son and grandson are going to Panama in Sept because my grandson is paralyzed due to an auto accident...I am very nervous about this trip but I believe everything will go great and we as a family will hope for a miracle....
 
 
  darnell morris
Tuesday, August 17, 2010
Holly,I hav just learned of you. Will keep up with you as I am also going to Panama in Sept. for rheumatoid arthritis. I know we have different things going on , but I am thankful there is hope for me and others . Thanks Darnell (female)
 
 
  Rebecca Tolin
Tuesday, June 8, 2010
I've had the opportunity to meet and interview Holly for a series I'm writing about Cell Medicine & Medistem. I'm a freelance journalist for the non-profit website voiceofsandiego.org. I'm looking to interview someone else by  phone who is planning to go to Cell Medicine in the near future. If this is you and you're willing to talk with me, please email rebeccatolin@yahoo.com. (I'm on deadline to speak with someone this week, June 8 - 11) Many thanks!
 
 
  Linda Storey
Wednesday, May 26, 2010
Holly, I just watched your video.  I'm glad to see you're being aggressive.  I was diagnosed in 1977 and flew to Germany in 1988.  The doctor there stopped my disease but I am still stuck in a wheelchair.  Since I've have no progression of the disease I am considering going to X cell in Germany.  Are you familiar with them?  Also what is the name of the clinic you went to.  Please check out my nonprofit website, raising funds for MS.
www.CASEFORMS.org also www.lindastorey.com
 
 
 
  Tina H O'Neill (Curtiss)
Monday, April 19, 2010
Hi Holly, I really enjoy your adventure so far !! I've had quite the trip myself !! After 20 yrs with MS and almost 4 stuck in a room I got my life back again with Tysabri !! It's my miracle drug for now !! Not sure how long it will continue to work, but will enjoy what I get for sure!! I can DANCE again !!!  Stem Cells  the HOPE FOR MANY !!! Is it my NEXT MIRACLE !!! Maybe ?!! I know something will be !! Never Give Up or Give In !! Good Luck !! You Go Girl !! Tina
 
 
  Kris Moy
Friday, April 9, 2010
God, Holly - you are absolutely awesome.  You will be in my prayers.   You keep fighting and leading the way. Your courage inspires me.  Much love,   Kris

PS  You look as stunning as ever... ;)
 
 
  Trisha Lux
Thursday, April 1, 2010
Thanks for the info. :-) I'm very interested in going to Costa Rica and having the treatment done for my MS.
I just need to win the lottery!!!!
 
 
  Russell Miller
Sunday, February 14, 2010
Congratulations on keeping such a informative web site.  I hope your improvements in health keep on keeping on.
 
 
  Heather
Monday, January 25, 2010
Holly, what an incredible story of courage and hope you share. I want to thank you for your story! My dad has had MS now for 20 years, and I hope one day he is given the chance to go through a treatment that works, like yours. Take care, and God bless!

Heather
 
 
  peter
Wednesday, January 6, 2010
It's very interesting blog. you are a hero to fight MS. I will follow up your progress.

Best wish!

Peter
 
 
  LaTish
Monday, December 14, 2009
Holly,
Thank you for your courage in being a part of this clinical endeavor.  It is because of persons like yourself, that we can hope for a cure and help with M.S. disabilities.

LaTish
aka Fishead/FishOP from MSW
 
 
  Vern Beachy
Monday, December 7, 2009
Hi Holly;

Just a note to say Hi. Hope you are doing extremely well!
 
 
  Michelle Bible
Sunday, November 8, 2009
I just want to thank you for giving me hope back again! I have had ms since '91 and there has been times when I had none.
Thanks again-Michelle
 
 
  Nikki Waddle
Friday, October 23, 2009
Hey Holly--
           I was on youtube and stumbled onto your video entries. Your experience with the use of stem cell therapy sounds so positive. My question is did you have to pay for it out of your own pocket or did you have health insurance? I have had MS since 2001 and I have been quite eager to hear from people who have done stem cell therapy.  I have been on an injectable therapy since about 2002 and I want to get off. I have health ins. but it's CRAP! I do hold duel citizenship in the United Kingdom so therefore I get FREE healthcare over there.  I was thinking about the trip but I really cannot afford it.  I was denied any sort of gov assistance so I generate NO income at all.  I have definately been one of the fortunate ones who have not been too badly effected by our disease. I too started a website of my own it is called www.askmeaboutms.com.  You should check it out and let me know what you think.  I also have a guestbook.  I do have more questions for you but I don't want to put so much on you at once. I appreciate your time. Have a good one.  Hope to here from you soon--Nikki Riverside, Ca. nikfam7@verizon.net
 
 
  Virginia Glover-D'Amico
Wednesday, October 21, 2009
Hi Holly, I guess you are home from Costa Rica by now. I would really love for you to drop me a line and let me know how you are doing.
So far, there has been no change for Ron since we were with you in CR back in Sept. I don't think the cells helped him as much this time as they did last year.
 Hope everything is well with you. Please let me hear from you. Virginia
 
 
  Lisa LoCascio
Sunday, October 18, 2009
Holly Thank You for this very imformative blog
my sister in law has had MS for five years and her copaxine is not working anymore I would like her to go to CR for SCI but she wants to wait until it is made available in the USA-- considering the amount of money the drug companies are making her I doubt that will ever be-- how sad- Lisa from New York City
 
 
  Shandon Fugate
Saturday, October 17, 2009
Very informative site.  My son is 4.5 yrs old with Cerebral Palsy and wondered if many CP pts are being treated in Costa Rica?  Thank you so much for all the information and sharing your experience.
 
 
  Judy
Friday, September 18, 2009
Thank You for all you have done , my son has MS since 2002, and is planning a trip to CR because of your story, he has hope.  God Bless You.
 
 
  Sarah Loveless
Sunday, September 13, 2009
Hello,
We have never met but I am one of your fellow San Diego Zeta sisters.  Thank you so much for creating this website.  I am looking forward to sharing it with family and friends.  I hope to meet you soon.  Best of luck and love on your treatments.  --Sarah Loveless
 
 
  Lisa Klopschinski
Tuesday, September 8, 2009
On September 16th 2005. I was eating lunch with my then 2 year old daughter. While we were eating lunch my food feel out of my mouth. I looked in the mirror and the left side of my face was droopy. I couldn't figure it out. I called my husband in which was working in town for Verizon. He came home to take me to the ER at East Pasco. At East Pasco the Emergency room Dr. said it looked like I had Bell's Palsy. He said he was going to order at CT scan b/c the Dr. on Monday would order one and since I was there might as well go ahead and have it done. I had the Ct scan done, the result were that there was a growth on my brain. He told me I wasn't going anywhere. The Dr. then ordered a MRI the MRI showed more growths. There at East Pasco I had lots of test's which included blood, Tee, MRI's, & CT's scans. This all happened on Friday. By Wednesday the following week I had lost feeling in my left thumb. At this time my Dr's all agreed I needed to be transferred to Tampa General. At Tampa General I had Spinal Tap which in it's self was awful. The Dr. who did the Tap didn't numb me correctly, so he was kinda enough to say I can continue, with out numbing you or pull out and start all over. That was the most painfullest procedure I have endured awake! I believe for 2 day's after I was on Morphine for a migraine! After the spinal tap came back clean. I had a Angio Gram, countless MRI's & CT scans. My Dr's kept telling me I had disease such as " cat scratch fever, Lupus, viral encephalitis, lot's more! The final call for me was to have a brain biopsy. On September 30th of 2005. I had a brain biopsy. After the biopsy I stayed in the hospital 3 more days. When I came home I had 12 staples on the right side of my head. I was home for less than 48 hours and I started having seizures when I was getting Nicholas ready for school. Not wanting Nicholas to be worried, I had them timed. When I knew they were coming on, I would hide in my bedroom. My sister came over and finished getting Nicholas ready for school. Later that day I started seizure medication. A week later I was able to get my staples out, and learn that the biopsy came back as possible Viral encephalitis. Now it's November 11th 2005. My husband was off that day as being veteran's day. That day I lost all speech control. I couldn't talk. It was such a struggle to get anything out. We called Nero Dr. he said not to worry about it, I could wait until next week to have an MRI. I along with my family new I needed to get to Tampa general asap. The ER Dr. there told me I was having a stroke. I was only 31 and having a stroke. At this time I lost all facial feeling on the left side of my face, my left I is droopy, and the feeling in my left thumb, and index finger (all of which I still don't have feeling and never will). At this point I switched Nero Dr's three times until I found Dr. Edmund Grant. He was my Savior Dr! He diagnosed me with Multiple Sclerosis. I was happy to finally know what I had. I was bound and determined not to let this disease over take my life. It is a struggle to live with. You have to learn to have a good attitude, and not let every little hurdle get you down. I am now taking an injection every other day to slow the progress. I am now seeing a wonderful Dr. at the Shepards Center in Atlanta Ga. This is an amazing treatment center for patients with M.S. I am very thankful for my husband, kids, parent's, sister & friends. Without them I couldn't have gotten through this nightmare! To everyone live everyday like it's your last b/c you never know what tomorrow will bring!  
 
 
  mike
Tuesday, September 8, 2009
Good day, My name is Mike Carpenter and a friend of mine sent your e-mail to me to check out, her name is Priscilla Wolf. I was diagnosed with MS in 2006 and have had some of the same issues as you. I have been blessed to be married to a lovely , intelligent woman who is also a RN. Margee has helped me a great deal in coping with this. I also have the (benifit  ?) of  being a 100% disabled Vet so I receivew my treatment and meds from the VA. I am currently on Rebif 3 times a week. I have not had any major relapses, just a steady decline. In the cooler weather I like to drive my motorcycle ( a HARLEY) Thanks for putting up this website, I am  always looking for more information on MS.  Time to go and get more done this AM.
 
 
  Tony
Saturday, September 5, 2009
Hi Holly,
I was wondering how you are progressing since the stem cell treatment. Has it steadily improved your symptons / condition. I am due to see a MS specialist here in the UK, but they will not carry out treatment here in the UK at present so the only way forward will be to follow your example and head abroad. Kind regards, Tony
PS I am 50, male and PPMS
 
 
  Cheryl Evans
Friday, August 28, 2009
Hello Holly,
I just sent you an email; therefore thought it only prudent to sign your guestbook. I look forward to hearing from you.
I agree with all that have said how courageous and informative you are. I'm here sitting by the phone, so call or reply as I am very serious about this.
Best Regards, Cheryl
 
 
  Astrid
Thursday, August 27, 2009
Hi!
I am a "girl" 46 years old, ms since 28, married, 2 children  and we live in Norway.
Best regards Astrid

 
 
  Patsy Klassy Windsor
Monday, July 27, 2009
Hello Holly, Just returned from my 50th class reunion where I once again got to visit with your dad after -----let's just saw many years.  He told us all  your amazing story as well as his!  So wonderful to hear a success story!  I only wish this had been available when my father was ill.  Thirty five years ago he died from a dreadful disease called scleroderma.  Basically, his skin and internal organs hardened, he lost feeling in his hands, arms and legs and suffered from huge open sores.  After reading what you have to say about the treatment, I have no doubt but that it would have helped him.  They STILL have no treatment for his disease.
Best wishes for your continued return to good health and I, as well as many others who heard from your dad this weekend, will pass your story on.
 
 
  Michael Todd
Wednesday, July 22, 2009
You have done me a big wonderful service by organizing and presenting all of this information.  I will be sharing this with my daughter Dorita so that she can follow in your steps and hopefully get out of her wheel chair and go back to enjoying her life.  Thank you for all you are doing.  You are inspiring.
 
 
  Giselle Tomiselli
Friday, July 17, 2009
Thanks for your informative and wonderfully exciting website.  I am planning on going to Costa Rica to have my stem cell treatment on August 9th, 2009.  I have been diagnosed with MS since 2000 and have been on Betaseron, Novantrone, and Tysabri.  There was no other road to take and I am glad I have made the decision to take this road less traveled.  Congratulations on your success and hope to be able to share in it soon also.
 
 
  Jeff Koblitz
Tuesday, July 7, 2009
Thank you for the courage to share your story and help so many people.  Your story and website will touch thousands of people like me that you will likely never meet.  Because of you and your story I'm heading to CR to reverse this crappy disease and get my life back.   My family and I thank you in advance, the difference you have made and will make in people's lives from this will be ie97measurable.  God bless you!
 
 
  Jan Welden
Tuesday, July 7, 2009
Holly - you are very brave-I am in awe - you really make sh@@ happen.  I have had MS since 1990 - last 4 years have really kicked my butt.  I take no medication - not really sure about the choices - so many mixed reviews.  I definitely will follow your progress.  I wish you the very best.

Jan
 
 
  Sharon Hillis
Sunday, July 5, 2009
Thank you for this informative web site.  I am going to CR Aug. 17.
 
 
  Andy Nadelen
Friday, July 3, 2009
Enjoyed your web site.  Very informative.  Will send an email.
 
 
  mark lozano-ross
Thursday, July 2, 2009
 Just added your site as a link on mine. Going to CR July 13th
 
 
  Barbara
Wednesday, June 17, 2009

Thank you for helping to "lead the way" on the mission to understand and help find a cure or treatment for MS.  I've now entered into SPMS (after many years of RRMS), and feel I must seek out a treatment option for myself, (DMD's have been unsuccessful for me todate.)  Because of your insights on MS World, I will look into the option of going to Costa Rica for treatment.  Wishing you continued improvement.   Blessings,  B.  (Southern Ontario)

 
 
  Lou Anglin
Saturday, June 13, 2009
I am amazed by all the information you've found in your searches.  My sister-in-law is Nancy Wilson (Whitter, CA)....she's half way through her treatment.  I pray every day for improvement for her.  She is, without a doubt, one of the most wonderful people I've ever known.  Her family is 100% +++ behind her.  Please join us all in a prayer for Aunt Nancy.  I know she will receive great results!!!
 
 
  Barbara Evensizer
Friday, June 12, 2009
We are supposed to get a call tomorrow from a Dr in Costa Rica to get my husband John set up for treatments. John is 62 years old and
a year ago noticed he was really tired and had a limp. The Dr said he has progressive MS so they have him on Rebif and LDN. The states have nothing more to offer so that is why we started looking in other countries. Im impressed with your web site and blogs you do to help others. Please keep this up!!
Barbara
 
 
  Riana Quinn
Thursday, June 4, 2009
Hi! Holly, I'm in Panama City, Panama with my best friend, Debbie Cole, for last week of 4 week treatment with SCI for her MS. We met you and Richard here a couple weeks ago when you were on your way back to Costa Rica with your Dad. It was such a pleasure meeting both of you. Debbie has made minor improvements so far, but we expect more as she rebuilds her muscle strength. Good luck to your Dad.
 
 
  Roger Erickson
Monday, June 1, 2009
Hi Holly...I have been tracking your progress with Jeanne and "one of my best friends" your DAD!!!
He and I went to Postville School together and became everlasting friends as we pregressed thru high school.  I can hardly wait to see him at our 50th Class Reunion this summer.  He always finds a way to get back to us!
I am so happy that you are progressing and improving each day.  I am passing your website onto my daughter who has a friend with MS. 
Again..God Bless,,and hi to that friend of mine.
Roger
 
 
  Mayra
Saturday, May 16, 2009
I was Dx in January 16, 2009.  How to forget that day?  Anyway, RRMS, yeah sure!  In March I got a new relapse...  I hope I can do this treatment.  I am going to investigate i It first though...  Thank you for this great page!  I have never thought I had Hope, now I feel the Hope...
 
 
  Phyllis Pryor
Thursday, May 14, 2009
Hi Holly,  I've had MS for 10 years, it's really affecting my job, I'm a mail carrier.  I don't think I can tolerate another hot summer. Your story is very inspiring, I wish I had money to go to Costa Rica.  I'll be following you progress on your site and wish you all the best.
Phyllis Pryor
 
 
  Vince
Thursday, May 14, 2009
Have a safe trip Holly...  Vince
 
 
  Florence Rainey
Wednesday, May 13, 2009
 I  love your courage.
 
 
  Sue Farmer (pool)
Tuesday, May 12, 2009
Just read the opening page, but will be back for more.  I'm so glad we met--You Rock! You have your act together with this  and I will be asking you web questions. I called my friend Ana and was going to wish her a happy mother's day and found out that they upped her surgery, so I will be in my work mode, because she is the A in S.A.S.  Our site is sassandiego.org L8,Sue
 
 
  Denise
Sunday, May 3, 2009
Hi Holly,
I live in Vancouver, Canada and for weeks I have been researching and new updates on "cures" for MS.   I was diagnosed in 2002 and have gone steadily downhill.  I found a website on Don Margolis and quickly contacted him.  Thru his emails I somehow stumbled onto your website, and thank goodness I did.  I am schedule to go to Costa Rica the end of May.  I found your website AFTER I booked my trip and I still had lots of questions ... but you answered all of them.  I am now very excited to go for treatments, before I was scared.  Watching your videos, you appear relaxed and unconcerned which gives me strength for the next three weeks (before I go).  Thank you for being honest and sharing such a personal time.  
Most sincerely and with great gratitude,
Denise
 
 
  Chris Artemis
Wednesday, April 29, 2009
 
 
  Nancy Wilson
Monday, April 13, 2009
Finding out about you and your journey through a friend who works with your stepmom has filled my heart with hope.  I am so anxious to connect with you whenever you have a chance, but I'm trying to dig around and get onboard with this as soon as possible.  Thank you so very much for all the care you have taken in presenting this information. 
 
 
  duke merino
Sunday, April 12, 2009

you look so good just keep getting better 

 
 
  Julissa Deckard
Tuesday, April 7, 2009
Dear Holly,

I'm deeply grateful to you for documenting and sharing your "pura vida" journey.   I'm 42 and have secondary progressive MS.  I'll be scheduling treatment at ICM soon.

Continued good health to you!

Julissa Deckard
 
 
  Andrea
Friday, April 3, 2009
Hi Holly,
I feel like I already know you.  I've been reading your San Diego girl updates on MSWorld and saw this link.  I am in the process of setting up my fundraising to go to Costa Rica and hope to be heading there this summer.  Had lunch with Preston the other day, he has been very helpful.  Just wanted to say thank you!
Andrea
 
 
  Emiko Johnston
Monday, March 30, 2009

Thank you for sharing your story.  I, and two friends, have been diagnosed with MS.  I have RRMS, while one friend has SPMS and the other sadly has the most aggressive PPMS.  I plan on sharing your story in case they haven't seen it because we need to share in the fight.  I have a few questions I would like to ask and will access the Contact Holly option on your site.  Thank you again and God Bless you for sharing your story.

 
 
  Trish
Monday, March 30, 2009
Hi Holly!   Thank you so much for sharing your journey.  You'll never know what it means to me.  

I want to send best wishes to your dad too.  Hope his trip is a success!  Trish
 
 
  Diane
Saturday, March 28, 2009
So happy to see your video's  & read about your experience in Costo Rico. I left you my name & ph # tonight. 

Give me a call on my cell when you get the chance or just leave a message. :-(
TTYL,
Diane
 
 
  Sandra Jackson
Saturday, March 28, 2009
Holly,

I am so glad to hear that you are doing better.  I hope you have continued good health and next time I am in San Diego visiting my family maybe we can get together.

Sandra
 
 
  Crystal
Monday, March 23, 2009
Hi Holly I am glad you are doing so well. I just got really excited and thought you would like to know I just read an article about you. here is the link
http://culture11.com/diary/37440

thanks for sharing your exprience with all of us.
 
 
  Steve
Sunday, March 22, 2009
Hi Holly,  Thanks for leading the way.  I hope to be right behind you!
 
 
  Diane Bennett
Monday, March 16, 2009
Dear Holly,                                                                    Thank you for leading me to your website.   You're such a wonderful lady, sharing such important information about the stem cell  treatment you received in Costa Rica.  I was diagnosed with MS while pregnant with my third  child in 1997.  I am still walking and driving and I am getting Tysabri infusions once a month since August 2008.  I hope your Father does well with his treatment for diabetes.  God Bless.  Diane
 
 
  Anna
Sunday, March 15, 2009
Thank you so much for inspiring me! I read about your stem cell theraphy experience about a month and a half ago. You have truely made a difference in my life. I am only 20 so when I got diagnosed with MS it was really devastating. I thought that my life was over. When I read about your experiences, I called ICM and consulted with a doctor. I realized how close we are to find a cure for MS and I realized that my well being is in my hands. I am so optimistic and excited about the future now.  I make sure to keep up with the stem cell research. I hope to get it within 4 to 5 years. I am confident that someday  I will be able to ride bikes, hike, and run again! My life is just starting! :-)
 
 
  Pam
Saturday, March 14, 2009
Hi Sandiegogirl!

I haven't seen you in chat in a while and happened across a thread at MS World about stem cell transplant that lead me here!  I have so happy to hear of your good fortune and wonderful results.  I admire your courage and strength to look outside the FDA box.  You go girl!

Pam
Mrs Mole from MS World Chat
 
 
  Sherry
Friday, March 6, 2009
Holly, I have been reading about you for awhile.  I think you and Preston are the reason I decided to go on May2.  I hope I get some of the wonders you have received with the treatment.  Great site--this must be what you do all the time.  Loved everything, so informative on all subjects.  Thanks a million  and God Bless---Sherry
 
 
  Marian
Saturday, February 28, 2009
Hello Holly!

A friend suggested I look at your blog, concerning the treatment you received at Costa Rica, which led me to your website.  I have to admit, It's been quite an inspiration to read, and I'm actually astonished at all the improvements you've noticed since the onslaught of the treatment. 

I was diagnosed with RRMS in September of 2004 at age 23, but I was already showing signs of it well before then.  I have a milder form, mainly with vision loss, and some temporary cognitive dysfunciton (among other things), but the fatigue you often mention in your videos were the most debilitating.  Like you, I tried medication (Copaxone) with no imporvement; if anything, it caused more flare ups. Your blogs talk about sensitivity to food, and I know what you mean about cutting out those Chai's! :)

Reading your account of Costa Rica is giving me a lot of hope. Thank you so much  for posting your story and your experiences! I was hoping you'd post more info on how to contact the facility you visited in Costa Rica for those treatments,  and the average cost for everything (i.e. flight, accomadations, treatment, etc).  Your website is most invaluable to those suffering from this strange disease.   Will definitely make repeat visits in the future. Many thanks! :)

Sincerely,
Marian
 
 
  Charlie Carpenter
Wednesday, February 25, 2009
Holly! ...Hey, Doll! Your site here is very cool and well laid out - and good for you keeping up with your exercises! I do mine, but not as competently as you.
 
 
  Brian Essex
Wednesday, February 25, 2009
Holly you are one of those rare people who make me proud to be from Victorville!  Glad to hear you are doing so well.  Great website! 
 
 
  Hilda
Wednesday, February 25, 2009
Holly,
You have given all of us with MS in the family a new vision.  Many of us are so  programmed to not look beyond what the "experts" tell us, that we miss the opportunity to seek help and cures in other parts of the world.  And, we need to trust our own inner voice.  You are doing just that.

Thank you so much for your sharing, vital information and honesty.
 
 
  LISA
Tuesday, February 24, 2009

Holly,

A friend directed me to your site & I am so glad she did.  I was diagnosed with MS in 1/06.  I don't think that I can find the proper words to tell you how much your sharing this experience with others mean.  Needless to say, this has provided alot of hope (and excitement) for me & I'm sure many, many others.  Hope that you continue on a positive & successful road.  I will defininely be checking your site for addtional updates.  Thank you for sharing your experience.

 
 
  Tamara
Tuesday, February 24, 2009
I am overwhelmed by the details reported and the experience you have had.  All those times I asked you how you were doing - YOU WERE LYING!! You looked great, but felt much less than great. I pray God will use all this information to encourage others with hope. None of this was possible without Him! He has given you knowledge and strength to carry on. And carry on you did! Love Tam --- P.S. Maybe someone in the US will be able to get this across the FDA desk somewhere. Boy, is the FDA and US behind. Kinda sad.
 
 
  Carrie Caldwell Bershee
Tuesday, February 24, 2009
Holly-
I've been following your progress through emails forwarded by my parents and by Jeanne.  I am so happy for you and your family that you are healing, and that you had the guts and the ability to seek out the treatment you needed.  I am very excited for your dad's treatment, as well.  My father-in-law has diabetes and severe arthritis, so I intend to check back often to see how the treatment is benefitting your dad.
 
 
  Marla
Monday, February 23, 2009
Holly, 

We are so excited for you and all of your positive updates! As we continue our prayers we will continue to check in with you on your site. Next time we are your way we hope to see you!

Much love, Marla, Ron, Megan, and Trevor Shackelford
 
 
  Liza
Monday, February 23, 2009
Holly, you continually amaze me. I have always admired your willingness to help others and how you always fought for what you believed in. I'm so glad things have worked out so well with your treatments, but you're a fighter, and I expected no less!
 
 
  Kristi
Monday, February 23, 2009
Thank you for continuing to document your treatment, increasing knowledge and hope not only for those of us with MS but  also the friends and family who love us (and who we often protect from our pain and fear).   I love  how this site celebrates taking educated risks and fighting back to regain control over health and well being.

I look forward to meeting you in person one day soon - but until then I will continue to be inspired and motivated by your strength of character.  Know you have another  fan rooting for you up here in the Central Valley.
 
 
  Randy Samberg
Monday, February 23, 2009
I love your website, Holly.  It is very inspirational.  After having the therapy myself, and not having any improvements, it motivates me to keep positive, and keep continuing my physical therapy.  Keep up the good work!
 
 
  AJ LUEDTKE
Monday, February 23, 2009
I am so excited for you and for myself and my family. I head to ICM on 3-21-09 for 2 weeks. I pray for the same results that you, Richard H., and Preston W. have seen.

I wish nothing but the best for you.
 
 
  Jordanne Menzies
Friday, February 20, 2009
I am glad you went and i hope the treatment works well for you.
 
 
  Michelle
Friday, February 20, 2009
I am doing a research paper on stem cell research for school and found your posts.  I hope you are well and that these treatments have worked for you.                           Michelle
 
 
  Daniel Faiella
Thursday, February 19, 2009
I love your web site! You look great and I am so happy you are feeling so good!!!
 
 
  Preston Walker
Thursday, February 19, 2009

I am soo glad you are feeling well!!  

 
 
  Deb Johnston
Wednesday, February 18, 2009
You have given me valuable knowledge about this new procedure-been fighting this damn disease for nearly 25 years and I think it is time to stop!

Continued success with your treatment, Holly!  I am pullking for ya'!

D~
 
 
  Keri Chavez
Wednesday, February 11, 2009
Your words of wisdom will always stick with me, "Only you can be your own advocate, when you don't feel comfortable about something ask the doctor more questions or get a second opinion. You have that right. Don't just take things at face value." You are such an inspiration for all of us who loss hope at times. Love ya